High quality, patient centred and coordinated care for Alstrom syndrome: a model of care for an ultra-rare disease


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Autor:  Stephanie Van Groenendael, Luca Giacovazzi, Fabian Davison, Oliver Holtkemper, Zexin Huang, Qiaoying Wang, Kay Parkinson, Timothy Barrett and Tarekegn Geberhiwot

Tytuł: High quality, patient centred and coordinated care for Alstrom syndrome: a model of care for an ultra-rare disease

Opublikowane: 24 November 2015

Tagi: Alstrom syndrome. Rare disease. Multidisciplinary clinics. National service